The Good – I am overwhelmed
and unbelievable grateful for the kindness, support, generosity, and love sent from friends and through the YouCaring
site to help our family. The messages of love and strength brought tears to my eyes and filled me with so much gratitude. Y'all have reached out in so many ways, from assisting with medical advice, our children, navigating insurance companies, supporting my parents in Puerto Madryn, praying... I can not thank you enough. What an amazing gift. It has also been hugely helpful financially. My
first round of bills was over 40K, and we had to pay out of pocket. It is a huge hit – so thank you friends for
covering half of it!!! Wow!
Another good - I am so
thankful for my faith. I gave this whole
situation over to the Lord. The outcome
is up to Him. Please, please continue to
pray for us. I have many more hurdles to
master.
The Bad – After getting released from the hospital on Saturday the 25th, I ended up feeling
ill, feverish, and within a short time, I was vomiting every two hours. I don’t know where all the vomit came
from. I ate a small pile of lentils and
rice and proceeded to throw-up that same pile for 12 hours. This also meant going right back to the
hospital. The hospitals
have saved my life, but they also come with many discomforts that I was
unaware of prior to this experience.
For
example:
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMJ3-GUP9yg11JvWzky6cEjCMBDrhClPGfeTtNylimC7yS4IyDLUC7Prmlq_f3TA7vq9ZBBzVekEZJdJMhb2CcNLoKT0IqRWfr-2RYtJvse0K7UR3KXntisVVhp6okYPuNhUXOMQBfHV28/s320/IMG_0088.jpg) |
Brain surgery stitches |
1 1. Doing all your
bathroom business IN BED in a plastic tray.
That is just weird, it sucks, someone wipes your butt, it is awful.
2 2. Strange things
happen at strange times… the floors get
buffed at 1:30 in the morning with the loudest machine imaginable.
3 3. Doctors and
nurses have parties in the ICU with little kids at 4:30 in the morning right
outside your room.
4 4. Cold baths can
happen at anytime - especially in the middle of the night. You are jolted awake with a bucket of cold
water being dumped and rubbed all over you.
Then it is time to change the bedding which got soaked throughout the
process.
5 5. Medications are
administered, your temperature is taken, blood pressure squeezed out of you – once
or twice every night despite your best efforts to sleep. This is probably a good thing, but it
sucks.
6. Oh the pain in
the ass. Literally. After a week stuck in bed, my butt hurts so badly. Now I understand what bed sores are. Shockingly painful. It is like sharp nerve jolts to your
ass.
7 7. I can’t leave out
the constipation. I can't move much and I eat and eat, my gosh, my belly has grown and gotten hard as a brick.
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPdex3FzZyKdU9F39UR7-FYs2K86u4YTDPtrpSPFA8FUv-L0v1VAoFdcAJTccVfNGMSAxmLdL1uwejZoD-l0AzEwI_ocVhf6tTglJHDUOtuW0FVWvZaa5wUrClnlit8NI9368WfOWj7CB_/s320/IMG_0180.jpg) |
Shoulder surgery staples |
8 8. The pain – that is
something new to get used to. Living in
a lot of pain. My shoulder is a wreck of
pain from the surgery. My brain feels
constantly plugged – like I need to pop my ears, but I can’t. Bed butt sores. Shoulder blade muscle tightness… And then there is the constant battery of
body tests - blood samples several times a day, electrode hook ups, blood
pressure to the extreme, and mountains of hair being ripped out of my arm from
tapings.
9 9. And last but not
least, I am scratchy. I haven’t had a
proper shower or bath since all of this started and I am a wreck of dead skin, dandruff,
scabs, and itches. Sometimes I just lay in
bed and scratch and scratch and scratch.
It feels so good, but it never goes away. Raza raza raza…
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLV0iVlvvJUAgYI63eT1UK2fC15QV7iIMGU8ZHsw8YLLXmlHhPyOCpaLapD8uL-Vrsyh_EAQVcGFQeAMsuzs0tr6KmM7lI0M4dM95jT0myaxg1-Ku9crzl9xAtV3SKXw5S_Fvd9FkuwaK7/s320/IMG_0087.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsmed0Amg-c5LrnOLgw9FhB94JgtW1cAaF6H1PGcNKdR-DqsEN8X9R0QMCoqfKTySAX3cnfP1zmguU7d4THbmJZnjJr1jslhCXDEdkHKP52D_969WiPBH8h1MA171oIO4PvnNbxTYAAoth/s320/IMG_0098.jpg)
The Ugly - I am embracing the ugly. It means I am alive. After 1/3 of my head was shaved for the brain
surgery, the rest of my hair was left in a rat’s nest. By the time I woke up, I was sporting the
first dreadlock of my life. It was giant. I couldn’t wait to be rid of it – despite
Carmela and Sofia telling me it was cool, and that I looked like their yoga silks
teacher. During my few hours out of the
hospital I begged Adam to cut my hair off.
My dad and Aunt Carol accepted the challenge of finding scissors in the
city and within 30 minutes they were successful, and Adam chopped off a carcass in
one solid piece from my head. It was
amazing. There are lots of ugly things I
still deal with. My left eye is smaller
and lower than my right. My left temple
is bulging with brain pressure. My right arm is covered in track marks, bruises
and now has a semi-permanent port. My left
shoulder is swollen and immovable. It
has to remain in a sling 24/7 for the next 4-6 weeks. Enjoy a small sampling of the ugly pictures!
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNgIXREZ6xSf8O3XZYOUusWOjL9Qj96DbKRrT5ijk5NmTv1wh9vgg-SX8e9yc_ZngM2GQ7IYRP5zAcfdxwrowmjAK9HznXcT4tGV0GWTquLn_ZJyrDVX0n9Q7VIrWmSBEHKC_L1s_b3WjW/s320/IMG_0100.jpg)